Rare diseases

IndoUSrare: Catalyzing Crucial Cross-Border Collaborations and Innovation to Address Unmet Needs in Rare Diseases

For the rare disease community in India, accessing available treatments is particularly challenging due to regulatory and economic hurdles. In 2021, the Government of India established Centres of Excellence (CoEs) under the National Policy for Rare Diseases to treat 63 identified conditions. There are now 12 such CoEs nationwide, with...